Mum of disabled teen backs demands for terminally ill people to be given energy bill support

Mum of disabled teen supports calls for terminally ill people to receive energy bill assistance

A mother of a disabled teenager is advocating for new measures to support terminally ill individuals in paying their energy bills. Carolynne Hunter’s 14-year-old daughter Freya, who has severe cerebral palsy, requires continuous oxygen from a life support machine at home, leading to a significant increase in electricity consumption. The family faced financial strain, which caught the attention of actress Kate Winslet, who generously donated £17,000 to cover their annual bill. However, Carolynne emphasised that families in similar situations cannot depend on charitable donations alone.

Carolynne is now backing a campaign by Consumer Scotland, urging the Scottish Government to provide financial assistance to individuals facing energy poverty due to serious illnesses. She highlighted the challenges faced by families managing high medical expenses alongside surging energy costs. Consumer Scotland’s recent report sheds light on the substantial financial burden of operating vital medical equipment like oxygen concentrators and electric wheelchairs, prompting the watchdog to call on both the UK and Scottish Governments to take action.

Consumer Scotland’s Chief Executive, Sam Ghibaldan, stressed the need for targeted energy support for disabled individuals and those with health conditions, citing potential health benefits and financial relief. The organisation proposed that extra support could be seamlessly integrated into the existing benefits system. Marie Curie estimates a 75% increase in energy bills following a terminal diagnosis, underscoring the urgent need for tailored assistance during vulnerable times.

In response, Social Justice Secretary Shirley-Anne Somerville acknowledged the necessity of ensuring essential care for children with disabilities and advocated for a social tariff mechanism to aid terminally ill individuals struggling with energy costs. The Scottish Government has allocated over £12 million to provide free financial support services, including debt advice and income maximisation initiatives. Such measures aim to alleviate financial strain and promote overall well-being among affected individuals and families.

Carollyn’s story reflects the challenges faced by many families dealing with serious illnesses and substantial energy bills. The efforts of organisations like Consumer Scotland and the initiatives proposed by the government are crucial steps towards providing much-needed support for those navigating financial difficulties during health crises. By raising awareness and advocating for targeted assistance, the collective aim is to ensure that individuals facing energy poverty due to ill health receive the necessary help and resources to maintain a decent standard of living.

Insights:
It is essential to address the financial challenges faced by terminally ill individuals and families dealing with high energy costs due to medical conditions. Support initiatives like social tariffs and targeted energy assistance can significantly alleviate financial strain and promote well-being during vulnerable times. Raising awareness and advocating for policy changes are vital in ensuring that those affected by serious illnesses receive the necessary support to manage their energy expenses and maintain a good quality of life.